This is a quote from all the doctors and any website that had info on laryngomalacia. Already at 12 months, Nolan was still having major breathing problems. He was a very happy boy, but he seemed to have sleep apnea at night. I first noticed it when he had to start going into our bed through the night and waking up from it at least three times a night. He had this old man snore and would inhale and get choked in his sleep....very scary to say the least! We went back to the ENT and by the time he was 18 months old, we had his adenoids taken out. When they took his adenoids out, they also performed a bronchoscopy and found that he also had tracheomalacia that was also interfering with his breathing. This surgery did not help his breathing, so we continued with the Prevacid and hoped it would eventually go away. The doctors also said that the tracheomalacia will go away. Well, it did not go away and with still have problems sleeping, sleep apnea, and choking on solid foods when 24 months old, the ENT decided to do the surgery for the laryngomalacia.
Has the surgery helped? The doctors are talking about performing it on my 6month old. Who has had the noisy breathing since birth and now requires someone to stay up with him when he sleeps because he pauses breathing and also chokes in his sleep. We are hopefully going to the OR Monday with the pulmonologist, ENT, and GI to find out the extinct of all his issues. As well as hoping they can do something to improve his condition, without the major surgery they are talking about having to call the cardiologist in on.
ReplyDeleteYes, the surgery helped so much with both my children. My little girl had it at 4 months old. She vomited all the time and would turn colors and choke all the time. My son would pause all the time in his sleep. My daughter is now 2 1/2 and she is still having some breathing issues but her feeding is normal. We saw a GI, cardiologist, and ENT. She did not have heart problems, so I am sorry to hear that you have to go through that. The ENT missed the rare form of laryngomalacia that she had so we were sent to the GI for lots of testing and other things until finally going back to the ENT. I would love to hear how things have gone since you last wrote. --Whitney Walker
DeleteSorry i found this blog in this 2018, my little girl was born with severe laryngomalacya, he has a supraglotoplastia , but now is on CPAP terapy, maybe need a traqueostomy, how are your babys now? can health good? what time (years) take for laryngo go?
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